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Showing posts with label Leprosy. Show all posts
Showing posts with label Leprosy. Show all posts
Saturday, August 21, 2021

Skenandore's Newest Offers Intriguing Look at Life With Leprosy in 1920's America

(Image from Barnes & Noble)

As the wife of a silent film star, 32-year-old Mirielle West lives a luxurious life full of glitz and glamour.  Her two children are watched over by a vigilant nanny so she's free to indulge in illicit drinks, glittery parties, and whatever fawning needs to be done in order to advance her husband's career.  Despite her enviable lifestyle, Mirielle is plagued by grief and guilt after the recent drowning death of her young son.  She's managing the dark moods that so often sweep over her as best she can, while trying to ignore the fact that her husband seems to be purposely spending more time at the studio than at home.  A visit to the doctor over a minor burn is the last thing she needs, especially when her physician notices a concerning lesion on her hand.  Mirielle scoffs at his diagnosis of leprosy.  A woman like her couldn't possibly have such a dirty, foreign disease!  

Even though she's certain there's been a horrible mistake, Mirielle allows herself to be shipped off to the Carville Lepers Home in Louisiana.  She and her husband have been in the tabloids enough already—she can't allow more spurious gossip to make the papers.  Sure the stay will only be temporary, Mirielle turns up her nose at everything and everyone around her.  It's clear she doesn't belong in such depressing circumstances, dwelling among the deformed and damned.  The longer she remains, however, the more she must come to terms with her new life.  Can she create a meaningful existence in such a demoralizing place?  As Mirielle tentatively begins to reach out, she discovers friendship, hope, and love in the most unlikely of places.

Besides Hawaii's Moloka'i, I'd never heard of other leper colonies in the U.S., so this novel offered me a fascinating look into how the disease was treated here in the 1920's and 30's. Not only was it interesting to read about the medical procedures used, but it was intriguing (and heartbreaking) to learn how patients were seen and treated by those in the outside world. The fact that the disease was so misunderstood by both medical professionals and the general public is especially thought-provoking considering all that has gone on in our COVID world (particularly anti-Asian sentiment). For these reasons and more, The Second Life of Mirielle West by Amanda Skenandore would make a good, discussion-worthy book club pick.

As far as characters go, the book is filled with complex and likable folk, of whom Mirielle is actually my least favorite. She's sympathetic, yes, but she's also hard to like because of her snobbery, self-centeredness, and constant self-pity. Her evolution as a character is evident throughout the novel, but I still found it difficult to really relate to her. Story-wise, this novel moves slowly without a focused plot to really keep it moving. Still, it's compelling and I definitely wanted to finish the book so I could see how it ended. While I didn't absolutely love this novel, I did like it for its intriguing subject matter, its sensitive portrayal of a devastating disease, its thought-provoking story, and its atmospheric historical setting. 


Grade:


If this were a movie, it would be rated:


for language (no F-bombs), blood/gore, mild sexual content, and disturbing subject matter

To the FTC, with love:  I received an e-ARC of The Second Life of Mirielle West from the generous folks at Kensington Books via those at NetGalley in exchange for an honest review.  Thank you!

Saturday, January 23, 2021

Middle Grade Historical Offers a Vivid, Heart-wrenching Portrayal of Life in a Leper Colony

(Image from author's website)

Culion Island is a lush Filipino paradise boasting sparkling blue water, sweet-smelling flowers, trees hanging with ripe fruit, and a peaceful quiet.  It should be overrun with eager beachgoers.  But, high on a cliff, an eagle made of white flowers warns outsiders to keep away from Culion.  It's a one-way island; people can come, but no one ever leaves.  Those who are "touched" with leprosy are brought to Culion to keep them isolated while their bodies slowly deteriorate and die from the contagious disease.  

Amihan "Ami" Tala was born on Culion after her pregnant mother was diagnosed with leprosy and brought to the island.  Although the 12-year-old is herself untouched, the leper colony is her home—everything she's ever known and loved.  She has no desire to leave.  When Narciso Zamora, a sneering government official, comes to Culion to enforce new segregation laws, which will force the "clean" away from the "unclean," everyone is shocked.  Not only will many new sufferers be brought to the island, but the untouched children will be forced to leave.  Although the policy is supposed to be for the children's benefit, Ami cannot see how being taken from her mother and their tight-knit community could possibly be a good thing.  

With little choice in the matter, Ami is sent to an orphanage on nearby (but not near enough) Coron Island.  Subject to Mr. Zamora's cruelty and teasing from the other children, Ami knows she can't stay.  Together with a new friend, she vows to return to her home, no matter what it takes.  Can she get back to Culion safely?  With her mother's health declining rapidly, will Ami make it home in time?  Will she be allowed to stay?

I'm familiar with Moloka'i, Hawaii's famous leper colony, but I had never heard of Culion before, even though it held the largest leprosarium in the world for decades, starting in about 1906.  In The Island at the End of Everything, Kiran Millwood Hargrave brings the place to vivid life.  Through the eyes of Ami, she helps readers see and understand what it must have been like for Culion's residents when the government began enforcing divisive policies that separated spouses, families, and friends.  The tension makes for an intriguing but heartbreaking story.  Ami is a sympathetic heroine for whom it's easy to root.  Her story is filled with terror, adventure, and suspense, which keeps The Island at the End of Everything from getting dull.  In fact, the novel is compelling as well as poignant and hopeful.  While the ending is predictable, I still very much enjoyed this insightful middle grade novel.

(Readalikes:  Reminds me of Moloka'i by Alan Brennert)

Grade:


If this were a movie, it would be rated:


for violence, disturbing subject matter, and scenes of peril

To the FTC, with love:  I bought a copy of The Island at the End of Everything with a portion of the millions I make from my lucrative career as a book blogger.  Ha ha.

Thursday, May 24, 2007

Haunting Moloka'i Impossible to Forget



This mesmerizing novel explores a world I'd never heard about, let alone read about until I picked up this incredible book. It's the story of Rachel Kalama, who is only seven in 1891 when she contracts leprosy, a Western disease that is slowly stealing the citizens of her beloved Honolulu. Although the Kalamas try to hide Rachel's secret, her sister carelessly blurts out the truth during a playground spat. Soon, the dreaded health inspector finds her and carts Rachel off to a hospital for lepers. Although she prays that she will be able to return home, Rachel soon finds herself en route to Kalaupapa, a leprosy settlement on the dreaded island of Moloka'i.


Moloka'i is synonomous with death, but Rachel finds a surprisingly vibrant community there. Despite the residents' horrifying disfigurements, she discovers that they are only people, both cruel and kind, saintly and wicked. Isolated from her home and family, Rachel longs to leave the strange society, to live again with her family, to travel to faraway places. This seems an impossible dream, but Rachel finds that her form of leprosy is slow moving and responsive to new treatments. In the meantime, she has found happiness in her new husband, Kenji, and her many friends. Her bliss is short-lived, however. She soon finds that she is pregnant, an event that would ordinarily bring her great joy. But not on Moloka'i, where babies are whisked away from parents to avoid contamination. Thus, Rachel's daughter is stolen from her arms and placed in an orphanage. When a tragic event further robs Rachel, she becomes even more insistent on fighting her disease and leaving Moloka'i. Finally, when she is stooped with age and marked with leprous sores, she is proclaimed fit. Immediately, she heads for Honolulu to find her family, especially her long-lost daughter. Back in her hometown, Rachel begins to realize how much has changed, and how little. Discrimination is ever-present, even from members of her own family. As determined as ever, Rachel seeks out her past, quaking with fear that her loved ones will never be part of her future.


Summarizing this novel robs it of its incredible depth, so I will stop here and say that you simply have to read this book. It is expansive and beautiful. The novel's sad history will haunt you, but its characters will delight you. This is a book that is impossible to put down or forget.
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